November 20, 2014
It's been a while since I've written, sorry about that. Been dealing with a bad back, but now I'm all better. Kevin is improving nicely. He is still very tired, things taste really funny to him too, his skin is still very dry and itchy and he's still kind of nauseated. But all his swelling is gone, his fever has been gone for a while now, his mouth thrush and canker sores have mostly healed, which is good. All and all he is doing well. I'm pretty sure he will need next week to completely recuperate since round too was a bit worse than round one. The side effects came on quickly and seem to last longer, we did read that this was a possibility and it's what is suppose to happen if the medication is working correctly.
On December 22 we go to Duke and Kevin will be scanned to see if IL-2 is working for him. I really am praying that it does, it would be really nice to have some good news for a change.
Unfortunately Duke messed up on Kevin's short term disability papers. We brought them in with us on October 20th, and the PA went on vacation for 10 days and never filled it out. Now I have nothing against anyone going on vacation at all, I think everyone needs to be on vacation and spend time with their family. But why didn't she give it to someone else to fill out? So we called again at the beginning of November, she still didn't fill it out. So we brought the disability papers with us, again, on November 10th when he went in for his second round and had her fill it out and fax it in. She did, but we got a call from Reed, the company that is handling the short term disability papers, that she filled it out incorrectly. So now it's 4 and a half weeks later and we have no short term disability set up. We are a tad bit worried about what we are going to do for money at this point. Kevin is stressed about the money, and he really doesn't need to be considering he is already stressed about his cancer returning.
Sorry for the rant, but I am a little peeved about this taking so long.
Thanks for your continued support and prayers, it means the world to us!
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